Contents Foreword Intro Findings Using PO in '06 Appendix A Appendix B Appendix C Appendix D

 

Foreword

by Eunice Kennedy Shriver

 

April 2007

 

Priced Out in 2006, the newest report published by the Technical Assistance Collaborative (TAC) and the Consortium for Citizens with Disabilities (CCD) Housing Task Force, documents the continued lack of affordable, accessible housing for individuals with significant long-term disabilities, including intellectual disabilities, physical disabilities, mental illness, and chronic health conditions.   This shortage is a crisis of epic proportions for people with disabilities seeking lives of independence, dignity and acceptance.

 

Priced Out clearly illustrates the persistent relationship between limited income and the lack of decent, safe, affordable and accessible housing.  Four million adult individuals aged 18-64 living with significant and long-term disabilities rely on Supplemental Security Income (SSI) to cover living expenses, but the value of that income has precipitously declined.  Despite the efforts of so many individuals, families, advocacy organizations, and legislators, the data are simply shocking: 

 

• In 2006, the national average monthly income of a person who relied on SSI as his or her source of income was only $632. When Priced Out was first published in 1998, the value of SSI payments relative to national median income was 24.4 percent.  Today the value of SSI has dropped to only 18.2 percent.

 

• Last year the national average rent for one-bedroom apartments rose to $715 per month—this equals 113.1 percent of monthly SSI income.

 

• In 2006—for the first time—the national average rent of $633 for studio/efficiency apartments rose above the entire monthly income of an individual who solely relies on SSI income.  Even this modest dwelling would consume 100.1 percent of someone’s income.  

 

How can we possibly expect any individual or family to spend 100-113 percent of their entire monthly income on housing?  It is not only mathematically impossible, but morally unconscionable. 

 

Creating and maintaining the financial and social supports to provide affordable housing for individuals with disabilities in the community is not only the right thing to do, it makes fiscal sense.  The American Association on Intellectual and Developmental Disabilities (formerly AAMR) has determined that it costs 50-75 percent less to provide services in community-based housing rather than more institutional-type housing funded by Medicaid.

 

Several states have recognized the housing crisis for people with disabilities and have answered the call by creating innovative, cost-effective solutions.  North Carolina dedicates 10 percent of the units in new federally financed Low Income Housing Tax Credit developments to people with disabilities.  Complimenting that commitment, rental subsidies are financed with State dollars. This policy thus far has created a total of 800 decent, safe, affordable and accessible units across the state for people with disabilities.

 

As part of Hurricane Katrina/Rita rebuilding policies, the State of Louisiana has committed to developing 3,000 units of permanent supportive housing in the eight Parishes most affected by these devastating storms.  Funding provided by Congress will assure that these units are affordable to people with disabilities with extremely low incomes and also provide housing support services through community programs.

 

Finally, as just one example, The Arc of Anne Arundel County in Maryland has partnered with foundations to develop financial literacy programs for individuals with developmental disabilities.  This program, designed to help its constituents establish credit, develop budgets, and utilize financial planning services, offers individuals with disabilities the tools they need to effectively join rental and home ownership markets. 

 

We know decent, safe, affordable, and accessible housing adds to the overall community. We know it makes financial sense for individuals with disabilities to live in community-based housing. We know federal housing programs are significantly under-funded and waiting lists are flooded.  And we also know that this under-funded system is poised for further strain.  Approximately 700,000 people with developmental disabilities live with one or more parents over the age of 65.  These aging parents have lovingly cared for their children, often in silent struggle, for decades.  What will happen to these individuals living at home, and how can we assure our most heroic citizens—parents—that their children will be properly taken care of? 

 

These circumstances call for bold, creative, and bipartisan measures.  Priced Out in 2006 recommends that Congress provide funding to create at least 150,000 new housing units for people with disabilities over the next ten years.  I say bravo!  It is long past time to acknowledge the tremendous restrictions and barriers that exist for people with disabilities and remove them one by one. 

 

In order to obtain and maintain decent, safe, affordable and accessible housing in the community and bridge the housing affordability gap identified in Priced Out in 2006:

 

• People with disabilities who have SSI-level income must have access to rental subsidies such as those provided by the U.S. Department of Housing and Urban Development’s Section 8 Housing Choice Voucher and Section 811 Supportive Housing for Persons with Disabilities programs.

 

• The production of new, affordable rental housing must become a national priority for individuals with significant long-term disabilities, including intellectual disabilities, physical disabilities, mental illness, and chronic health conditions.

 

• We must work with individuals, communities, foundations, and legislators to demonstrate that safe, affordable and accessible housing is not an issue of special interest, but indeed of national interest.

 

Housing is the key for individuals with disabilities.  It is the necessary foundation piece that leads to education, employment, and active participation in communities.  It is where families are nourished, strengthened, and loved. The United States needs to step up and fulfill its duty to provide all citizens with the tools they need to achieve greatness.  Only by doing so can we be a true example to other nations. 

 

As an advocate for individuals with intellectual disabilities and their families for over 50 years, I’ve seen the unique power each individual possesses to make a difference.  We’ve made great strides by working together.  But, despite these efforts and successes, we have much left to accomplish.  I urge you to join me and make housing for all people, but especially our most vulnerable, not just a priority, but your priority.

 

I commend TAC and the CCD for yet again amassing such compelling and needed data in the field of disability housing.  They continue to raise and maintain awareness on such a critical issue.  I am grateful for their efforts.

 

 

Most sincerely,

 

Eunice Kennedy Shriver